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Advice and support

PANS/PANDAS UK Charity

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.   One estimate suggests that up to 1 in 200 children suffer from this condition.   Medical Guidelines https://www.panspandasuk.org/medical-guidelines   Resources for parents including diagnostic…
Telephone:
07425856181
E-mail:
paula.scott@panspandasuk.org
Website:
https://www.panspandasuk.org
Age Range:
Suitable for all ages

Gravesend Epilepsy Network

Gravesend Epilepsy Network is an independently registered charity, set up to give direct help, information and support to people with epilepsy and their families. GEN is recognized as one of the leading epilepsy support groups in the country, and is in regular contact with many…
Telephone:
01474 351673
E-mail:
gravesendepilepsy@btinternet.com
Website:
www.gravesendepilepsynetwork.com/
Age Range:
Suitable for all ages

Bemix Group Support

Our projects and support aim to provide a stepping stone towards greater independence for people with learning difficulties and/or autism. In our groups, people have the opportunity to develop a range of skills. These include skills linked to the project, for example, music, media, performing…
Telephone:
07966017597
E-mail:
steve.perry@bemix.org
Website:
https://www.bemix.org/.../group-support
Age Range:
Ages 16-18, 19-25, 18-25 (Transition)
Disablities:
Learning difficulty, Communication and interaction, Autism, Profound, severe or complex, Behaviour and learning

Be Seen, Be Heard campaigning group - Dover

Be Seen, Be Heard is a campaigning and awareness raising group. We develop presentations around attitudes towards people with learning difficulties/disabilities.  We visit schools and other community groups and give our presentation/workshops. We are people with and without learning difficulties/disabilities and as part of our…
Telephone:
07921470035
E-mail:
lis.clayson@bemix.org
Website:
https://www.bemix.org
Disablities:
Learning difficulty, Behavioural, emotional and social development, Communication and interaction, Autism, Profound, severe or complex, Behaviour and learning

Be Seen, Be Heard campaigning group - Sittingbourne

Be Seen, Be Heard is a campaigning and awareness raising group. We develop presentations around attitudes towards people with learning difficulties/disabilities.  We visit schools and other community group and give our presentation/workshops We are people with and without learning difficulties/disabilities and as part of our…
Telephone:
07834 190140
E-mail:
Thomas.Holton@bemix.org
Website:
https://www.bemix.org
Disablities:
Learning difficulty, Behavioural, emotional and social development, Communication and interaction, Autism, Profound, severe or complex, Behaviour and learning

Making A Difference

Making A Difference is a wrap-around family support service that provides support within the home and short breaks in the community for children and young people with disabilities and vulnerable adults Short breaks are community based activities and provide opportunities for young people and adults…
Telephone:
01634 541055
E-mail:
natasha.nagi@makingadifference.cc
Age Range:
Ages 11-16, Ages 16-18, Ages 0-4, Ages 5-10, 11-18, 19-25, 18-25 (Transition), 0-5, Suitable for all ages, 6-10
Disablities:
Learning difficulty, Physical disability, Hearing impaired, Language difficulty, Behavioural, emotional and social development, Severe learning difficulty, Visually impaired, Communication and interaction, Autism, Physical sensory/medical, Profound, severe or complex, Behaviour and learning

Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales providing support and information, raising awareness and funding research. Referrals welcome from individuals and organisations.  
Telephone:
01427 718093
E-mail:
info@nystagmusnet.org
Website:
https://nystagmusnetwork.org/

Rapid Ramp - Disabled wheelchair ramps and steps

We are a UK leading modular metal ramp  and step manufacturer, offering a UK wide supply and installation service. Our metal wheelchair ramps and steps have a fully adjustable design, that can be modified and adapted. The systems provide access to different-sized public buildings and spaces, such…
E-mail:
sales@rapidramp.co.uk
Website:
https://www.rapidramp.co.uk/
Disablities:
Physical sensory/medical

Independent Special School - Hawthorn

Hawthorn is an Independant Special School set in a quiet rural setting for a maximum of 8 pupils with mental health/trauma and associated needs. Our school is set in an outside environment using animal assisted learning. Pupils age range is 11-18 years old and referrel…
Telephone:
07889762782
E-mail:
chalkhillfarm123@gmail.com
Website:
chalkhillfarm.co.uk

Involve Kent - Connect!

The programme is for neurodiverse young people aged 9-18 with an Autistic Spectrum Condition or on ASC assessment pathway across Kent The programme is funded by Kent County Council’s short breaks scheme. The aims of the project are as follows: To create fun opportunities in an Autism…
Telephone:
07474708132
03000 810005
E-mail:
youth@involvekent.org.uk
Website:
https://www.involvekent.org.uk/.../childrens-health-and-wellbeing
Age Range:
Ages 11-16, Ages 16-18, 11-18
Disablities:
Learning difficulty, Communication and interaction, Autism, Profound, severe or complex

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