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Brain and Spine Foundation - NeuroLifeNow app

If you've had a brain or spine injury, live with a neurological condition or are caring for someone who does, you can help make a positive change to improve care in this country.


There are more people in the UK suffering from a neurological condition than cancer, heart disease, or diabetes. But you wouldn't know it. Too often people with neurological conditions do not get the treatment, care and support they should. We, alongside the Neurological Alliance, want to help change that.


Make your story heard


Simply answer a few questions consistently each month through NeuroLifeNow - our new app and website. Tell us about your experiences in and out of hospital, your symptoms and your treatment and we'll help to amplify your stories to healthcare professionals, people who fund services and politicians and decision makers. 


We'll anonymise your data


The app is a safe, confidential platform. Your data and experiences will be anonymised - that means you cannot be identified by sharing your experiences. Only representatives from the Brain & Spine Foundation and Neurological Alliance, our trusted partner, will be able to access your data. You can also opt out at any time. 


We'll report back to you


Each month we'll report back what you, and others like you, are telling us. We can support you, or someone you care for, in managing conditions through our specialist Helpline, our peer support groups and via our information booklets.


Your stories will drive campaigning for better support for all people with neurological conditions. This is the beginning of something great. 

Who to contact

Contact Name
Brain & Spine Helpline
Telephone
0808 808 1000
E-mail
helpline@brainandspine.org.uk
Website
https://www.brainandspine.org.uk/

Where to go

Name
Brain & Spine Helpline
Address
Fourth Floor, CAN Mezzanine
7-14 Great Dover Street
London
Postcode
SE1 4YR

When is it on?

Date & Time Information
Helpline hours are Monday to Thursday: 9am to 4pm.

Other Details

Referral required?
No
Age Range
Suitable for parents
Age Range
18-25 (Transition)
Disablities:
Autism, Behaviour and learning, Behavioural, emotional and social development, Communication and interaction, Learning difficulty, Physical disability, Physical sensory/medical, Profound, severe or complex, Severe learning difficulty,

Local Offer

Local Offer Disabilities
Learning difficulty
Physical disability
Behavioural, emotional and social development
Severe learning difficulty
Communication and interaction
Autism
Physical sensory/medical
Profound, severe or complex
Behaviour and learning
Local Offer Age Bands
Transitions to Adulthood (16+)
Needs Level
Medium
High
Low
SEN Provision Type
Targeted

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